The first month of Nick’s life was really rough, I was trying to breast feed but then noticed he was not eating so had to start formula. Then he kept doing this really weird thing and no one was really for sure what was going on, so one night during a feeding he had an episode and it scared the lights out of me so I rushed to the hospital, and come to find out our little boy was having seizures. As a parent all I could do is ask my self what did I do wrong why is this happening to my son. We were transferred to Dells Children's hospital where we spent a week doing testing and many medications to see why he was having them. They were unable to find anything in the test but they had seen he had a little bit of blood on his brain and thought maybe that is what was causing them so we started medication to stop the seizures. The Dr instructed us that we would leave him on it for about 2 months then do another test and wing him off the meds. While he was on medication, everything was fine. We then started transitioning him into his own crib in his room it was hard on me at first but he was sleeping through the night from 10-8 in the morning so for him it was great. He was growing so quick and doing something new every week it was so amazing.
At 4 months, it was time to see what the test said and if we could wing him off the medication, so we went back to Dell’s, got word that the test was great, and we could start winging him off the meds. It took 4 weeks to wing him off. Then one day I took him out shopping with me and he was asleep, and the next thing I knew Nick woke up and was in a full-blown seizure I was so scared and could not believe this was happening again I hated that he had to go through this. That is when I realized we were all truly blessed with a great big family, they have all been there to help Chris and I get through this pain and uncertainty of this situation. The Dr just told us to put him back on the medication, but I wanted to know why this was happening, and the Dr. just kept saying we might never know. I battled with this for a few weeks and wanted answers but then had to just come to an understanding that we might just never know and all we can do is pray that he grows out of them.
Last month we were admitted to Dell's again for further testing because, we were not sure if he was having seizures or just doing something new. The Dr wanted to see what we were seeing and test him to see if they see any seizures and to just confirm the medication is working. We went in on Wednesday, and of course, what we were seeing was not happening that day so Dr decided lets keep him a few more days. Sure enough, he started doing what we were seeing, and once the test came, in the Dr. confirmed, they were not seizures and that the medication is working. Dr. is hoping that by the time he is 1yr he will just out grow them, but for now, we just have to give him medication.
Nick is a few days shy of being 6 months, and time is flying by way to quick, but he always seems to amaze me with his personality. He loves to hear noises he can make, and put anything he can find in his mouth. It is so amazing how some days he will look just like me then other day he will look just like Chris. He loves food and playtime. I recently took him out to the farm I grew up on and had so much fun I can not wait to take him there when he is old enough to ride on the tractor and explore the pasture with me so I can tell him stories of growing up out there.
I thank the good lord every day for everything he has blessed me with, my family, friends, my husband and my son most of all. I know that no matter what the out come of Nick's seizures is we will work through it and make sure he grows up just like any other child. I continue to pray that he will out grow them so none of us have to experience it again.
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